患者治疗教育在儿童特应性皮炎长期治疗管理中的作用

发布时间：2018-04-14 00:21

本文选题：特应性皮炎 + 儿童　；参考：《中国皮肤性病学杂志》2016年07期

【摘要】：目的评估患者治疗教育(therapeutic patient education,TPE)在儿童特应性皮炎(atopic dermatitis,AD)长期治疗管理中的作用,了解TPE对AD疾病严重程度、复发频率以及对患者生活质量的改善作用;评估以"AD教育课堂"为主的AD患者治疗教育形式的可行性。方法北京儿童医院皮肤科门诊诊治的298例2~12岁AD患儿按照随机分组原则分为实验组(intervention group,IG)和对照组(control group,CG),采用"AD教育课堂"的形式对实验组患儿及其护理人员实施患者教育,随访期限6个月,分别在实验开始时(T0)、3个月(T1)、6个月(T2)对患儿进行SCORAD评分评估并填写儿童及幼儿皮肤病生活质量指数调查问卷、皮肤护理-润肤剂使用认知调查问卷等,以评估TPE在AD长期治疗管理中的作用,判断此教育形式的有效性及可行性。结果实验组患儿的SCORAD评分、生活质量(quality of life,QoL)均有显著改善,护理人员对皮肤护理重要性的认知程度较前增加,实验组评估结果明显优于对照组,差异有统计学意义。结论 TPE在AD患儿长期治疗管理中发挥着重要作用,本研究采取的以"AD教育课堂"为主要形式的患者治疗教育形式是可行的,其可积极推广,但需不断完善。
[Abstract]:Objective to evaluate the role of therapeutic patient education in the long-term management of atopic dermatitis (AD) in children with atopic dermatitis, and to understand the effect of TPE on the severity, recurrence frequency and quality of life of patients with AD.To evaluate the feasibility of treatment education for AD patients in AD education classroom.Methods 298 children with AD aged 12 years old were randomly divided into two groups: experimental group intervention group (IGG) and control group CGG. The experimental group and nursing staff were educated in the form of "AD education classroom".At the beginning of the experiment, the children were evaluated with SCORAD score and filling out the questionnaire of quality of life index of children and young children, and the questionnaire of skin care and skin moisturizer use cognitive survey, respectively, at the beginning of the experiment, the patients were assessed with SCORAD score and filled out the questionnaire of quality of life index of children and young children, respectively at the beginning of the experiment.To evaluate the role of TPE in the management of AD, and to evaluate the effectiveness and feasibility of this form of education.Results the SCORAD score and quality of life (QOL) of the children in the experimental group were significantly improved, and the cognition of the importance of skin care was increased. The evaluation results of the experimental group were obviously better than those of the control group, and the difference was statistically significant.Conclusion TPE plays an important role in the long-term management of patients with AD. The main form of treatment education in this study, "AD education classroom", is feasible, which can be actively popularized, but needs to be improved constantly.
【作者单位】：首都医科大学附属北京儿童医院皮肤科;
【基金】：首都发展医学科研基金项目(2009-1044) 北京市自然科学基金项目(7154197) 北京市医院管理局临床医学发展专项(ZYLX201601)
【分类号】：R473.75

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