中枢性协调障碍患儿父母疾病不确定感、亲职压力及应对方式的研究

发布时间：2018-03-10 11:50

  本文选题：ZKS患儿父母　切入点：疾病不确定感　出处：《延边大学》2017年硕士论文　论文类型：学位论文

【摘要】：目的:了解中枢性协调障碍(Zentrale Koordination Storung,ZKS)患儿父母疾病不确定感、亲职压力和应对方式在社会人口学特征上的差异。探讨ZKS患儿父母疾病不确定感、亲职压力和应对方式的三者间的研究现状及相关关系,提高ZKS患儿家庭生活质量,提供实证依据。方法:本研究属于非实验性的相关性研究。通过便利抽样的方法,在吉林省延边朝鲜族自治州一所三级甲等医院已确诊为ZKS的患儿父母为研究对象进行问卷调查。本次研究共发放问卷350份,回收330份,其中有效问卷296份,有效回收率为89.4%。研究工具包括社会人口学特征、疾病不确定感量表、亲职压力量表、父母应对方式量表。应用统计软件(spss17.0),并采用方差分析、t检验、相关分析等统计学方法对收回的有效调查问卷进行统计分析。结果:(1)本研究中ZKS患儿父母疾病不确定感总分为2.82±0.48,处于中等水平,在居住地、教育程度、患儿性别与年龄、治疗方式等因素上,有统计学意义(p≤0.05)。(2)本研究中ZKS患儿父母亲职压力总分为2.63±0.62,处于高水平,在患儿的关系、工作状况、教育程度、经济状况、治疗方式等因素上,有显著差异(p≤0.05)。(3)本研究中ZKS患儿父母应对方式使用频率与作用大小总分分别为3.74±0.73、2.36±0.48,在民族、居住地、工作状况、教育程度、经济状况、患儿年龄、是否独生子、治疗方式等因素上,有显著差异(p≤0.05)。(4)ZKS患儿父母疾病不确定感、亲职压力与应对方式三者之间相关性分析后得出结论:应对方式使用频率与作用大小与疾病不确定感呈负相关(r=-0.283、r=-0.393,p≤0.01);应对方式使用频率与作用大小与亲职压力呈负相关(r=-0.401、r=-0.294,p≤0.01);应对方式使用频率和应对方式的作用大小呈正相关(r=0.491,p≤0.01)。即患儿父母疾病不确定感及亲职压力越高,应对方式使用频率和应对方式的作用就越低。结论:(1)ZKS患儿父母疾病不确定感处于中等水平,与居住地、教育程度、患儿性别与年龄、治疗方式等因素有关。(2)ZKS患儿父母亲职压力66.2%处于高水平,与患儿的关系、工作状况、教育程度、经济状况、治疗方式等因素有关。(3)本研究中ZKS患儿父母应对方式使用频率高,与民族、居住地、工作状况、教育程度、经济状况、患儿年龄、是否独生子、治疗方式等因素有关。(4)应对方式与疾病不确定感、亲职压力呈负相关,应对方式使用频率和应对方式的作用大小呈正相关,即患儿父母疾病不确定感及亲职压力越高,应对方式使用频率和应对方式的作用就越低。
[Abstract]:Objective: to investigate the differences of parental disease uncertainty, parental stress and coping styles in children with central coordination disorder (Zentrale Koordination Storungu ZKS) on the characteristics of social demography, and to explore the uncertainty of parental disease in children with ZKS. The research status and correlation between parental stress and coping style, improve the quality of family life of children with ZKS, provide empirical evidence. Methods: this study is a non-experimental correlation study. The parents of children diagnosed with ZKS in a Grade 3A hospital in Yanbian Autonomous Prefecture of Jilin Province conducted a questionnaire survey. In this study, 350 questionnaires were distributed and 330 were recovered, of which 296 were valid. The effective recovery rate was 89.4. The research tools included social demographic characteristics, disease uncertainty scale, paternity stress scale, parental coping style scale, statistical software SPSS 17.0, and ANOVA test. Correlation analysis and other statistical methods were used to analyze the valid questionnaire. Results: in this study, the total score of parents' disease uncertainty in ZKS children was 2.82 卤0.48, which was in the middle level, in the place of residence, education, sex and age of the children. In this study, the total score of parental pressure in children with ZKS was 2.63 卤0.62, which was at a high level. It was found in the relationship, working status, education, economic status, treatment methods and other factors of children with ZKS. There was a significant difference (P 鈮，

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