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室间隔缺损修补术后患儿母亲感知脆弱现状调查及影响因素研究

发布时间:2018-11-14 08:56
【摘要】:背景:室间隔缺损发生率高,随着医疗水平的不断提高,患儿经室间隔缺损修补术治疗后可正常生活和工作,然而室缺患儿术后可存在不同程度的心理行为问题。尽管孩子已恢复健康,但是母亲仍相信自已的孩子更容易患病、死亡可能性更高,这一现象称为母亲感知脆弱(Maternal Perceptions of Child Vulnerability,MPCV)。母亲感知脆弱对患儿心理行为发展至关重要,而目前国内外对先心病术后患儿母亲感知脆弱的研究都很少,国内也并未引进感知脆弱测量量表。因此,很有必要引进感知脆弱测量量表,进而开展室缺术后患儿母亲感知脆弱现状调查及影响因素研究。目的:汉化中文版感知脆弱程度量表并检验信效度;描述室间隔缺损修补术后患儿母亲感知脆弱水平,探讨室间隔缺损修补术后患儿母亲感知脆弱的影响因素。方法:第一部分:遵循Brislin翻译模型中的双人翻译-回译法汉化量表;经专家委员会及预试验调适条目;便利选取120例先心病患儿父母进行调查,计算信效度。第二部分:便利选取在北京阜外医院确诊为室间隔缺损且行修补术后的患儿母亲173名。采用中文版父母感知脆弱程度量表等对患儿母亲感知脆弱的影响因素进行测量。采用多元线性回归分析来确定感知脆弱的影响因素。结果:第一部分:中文版父母感知脆弱程度量表的内容效度指数(S-CVI)为0.90,各个条目的内容效度指数(I-CVI)为0.8~1.0。采用探索性因子分析提取2个公因子,累积方差贡献率为54.769%,各条目的因子负荷量为0.622~0.801。Cronbach's a系数为0.791,重测信度为 0.895(P0.01)。第二部分:患儿母亲感知脆弱量表得分中位数为5分;20.8%患儿母亲感知脆弱≥10分,感知脆弱处于高水平。感知脆弱总分及两个维度的多元回归分析结果显示:感知脆弱总分的影响因素包括焦虑、是否为独生子女、母亲年龄;两个维度的影响因素包括焦虑、家庭支持、患儿月龄、抑郁和右侧切口。结论:第一部分:中文版父母感知脆弱程度量表具有良好的信度和效度,适用于评价先心病患儿父母的感知脆弱水平。第二部分:室缺修补术后患儿母亲整体感知脆弱水平较低。焦虑、是否为独生子女、母亲年龄是感知脆弱的影响因素。
[Abstract]:Background: the incidence of ventricular septal defect (VSD) is high. With the improvement of medical treatment, children can live and work normally after VSD repair. Although the child has recovered, mothers still believe their children are more susceptible to illness and more likely to die, a phenomenon known as (Maternal Perceptions of Child Vulnerability,MPCV. It is very important for the development of children's psychological behavior that mothers' perceived vulnerability is very important. However, there are few researches on mothers' perceived vulnerability after congenital heart disease surgery at home and abroad, and no measurement scale of perceived vulnerability has been introduced in China. Therefore, it is necessary to introduce the perceptual vulnerability scale to investigate the current situation of mothers' perception of vulnerability after ventricular defect surgery and to study the influencing factors. Objective: to evaluate the reliability and validity of the Chinese version of perceived vulnerability scale, to describe the maternal perception vulnerability level of children after ventricular septal defect repair, and to explore the influencing factors of maternal perception vulnerability after ventricular septal defect repair. Methods: the first part: according to the Chinese translation scale of double translation in Brislin translation model, adjusting the items by expert committee and pre-test, the parents of 120 children with congenital heart disease were selected to investigate, and the reliability and validity were calculated. Part two: 173 mothers who were diagnosed as ventricular septal defect (VSD) and repaired at Fuwei Hospital in Beijing. The Chinese version of parental vulnerability scale was used to measure the influencing factors of infant mothers' perceived vulnerability. Multiple linear regression analysis was used to determine the influencing factors of perceived vulnerability. Results: in the first part, the content validity index (S-CVI) and the content validity index (I-CVI) of the Chinese version were 0.90 and 0.8 respectively. Two common factors were extracted by exploratory factor analysis, the cumulative variance contribution rate was 54.769, the load of each target factor was 0.791and the test-retest reliability was 0.895 (P0.01). The second part: the median score of mothers' perceived vulnerability scale was 5, 20.8% mothers' perceived vulnerability 鈮,

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