系统性红斑狼疮患儿父母以家庭为中心的教育干预效果观察

发布时间：2018-04-20 03:41

本文选题：系统性红斑狼疮 + 患儿　；参考：《护理学报》2017年06期

【摘要】：目的探讨以家庭为中心的教育干预在系统性红斑狼疮患儿父母中的应用效果。方法选取北京市某三级甲等医院儿科病房确诊为系统性红斑狼疮的患儿父母为研究对象,按入院时间先后顺序分组,2014年10月—2015年1月入院患儿的父母30名为对照组,2015年2—6月入院患儿的父母30名为观察组。对照组给予患儿父母常规健康宣教,观察组在对照组基础上,给予以家庭为中心的教育干预。评估2组患儿父母的疾病知识、疾病管理能力及患儿复诊依从性。结果观察组患儿父母疾病相关知识、疾病管理能力均优于对照组(F=14.162,P0.001;F=8.015,P=0.017),出院后6个月观察组患儿复诊依从性高于对照组(χ~2=6.667,P=0.021)。结论以家庭为中心的教育干预可提高系统性红斑狼疮患儿父母的疾病知识水平,改善患儿父母的疾病管理能力,患儿复诊依从性提高,值得临床借鉴使用。
[Abstract]:Objective to investigate the effect of family-centered educational intervention on parents of children with systemic lupus erythematosus (SLE). Methods the parents of children with systemic lupus erythematosus (SLE) in pediatrics ward of Grade 3A Hospital in Beijing were selected as study objects. According to the order of admission time, 30 parents of the children admitted to hospital from October 2014 to January 2015 were the control group, and 30 parents of the children admitted from February to June 2015 were the observation group. The control group was given routine health education, while the observation group was given family-centered education intervention on the basis of the control group. The disease knowledge, disease management ability and follow-up compliance of the two groups were evaluated. Results the disease related knowledge and disease management ability of parents in the observation group were better than those in the control group. The compliance of the observation group was higher than that of the control group at 6 months after discharge (蠂 2 = 6.667). Conclusion Family centered education intervention can improve the disease knowledge of parents of children with systemic lupus erythematosus, improve their ability of disease management, and improve their compliance to return diagnosis, which is worthy of clinical reference.
【作者单位】：中国医学科学院北京协和医学院北京协和医院儿科;北京协和医学院护理学院;
【基金】：卫生部卫生行业科研专项子课题(01202004)
【分类号】：R473.72

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