基于微信平台的家庭康复在脑瘫患儿家长中的应用研究

发布时间：2018-04-27 21:23

本文选题：脑性瘫痪 + 家庭康复　；参考：《南昌大学》2017年硕士论文

【摘要】：目的:探究脑瘫患儿家长对家庭康复微信平台指导的需求特点及其影响因素,为构建具有康复指导功能的微信公众号提供理论依据,借助微信公众号为患儿家长提供具有针对性的家庭康复指导内容,并探究微信公众号的应用实效及其对家长的影响。方法:本研究将量性研究和质性研究相结合,分三个阶段进行。第一阶段,采用质性研究通过半结构式访谈医院就诊的脑瘫患儿家长,并在此基础上通过专家函询法编制康复指导需求问卷,采用目的抽样选取121名患儿家长进行问卷调查。第二阶段,以前期需求调查结果为框架,以脑瘫患儿康复指南、相关书籍及医院医护人员指导意见为依据,申请微信公众号并确定康复指导内容。借助医院平台进行微信公众号推广,通过微信群聊与家长互动了解其动态需求。第三阶段,公众号运行3个月后,在查阅文献及专家函询的基础上编制患儿家长公众号使用现况调查表,借助微信公众号向关注用户发送问卷,以自愿填写的家长为研究对象进行公众号使用效果测评。结果:第一阶段研究结果显示,脑瘫患儿家长微信使用率为95.54%,有32.14%的家长关注过相关康复微信公众号,并且有94.64%的家长表示愿意关注患儿家庭康复指导微信公众号,其对康复指导公众号的需求得分为(31.80±7.60)分并且受文化程度的影响。家长每天浏览微信公众号的频率为(2.57±1.60)次,且阅读时间主要集中在临睡前。家长的康复需求以推拿按摩手法指导、行走(站立)训练、医护在线交流、日常饮食指导和言语训练指导为主。第二阶段的微信公众号运行现状:已有来自全国25个省份的190名患儿家长关注本微信公众号,其中以江西省用户最多为138名。公众号运行3个月共推送28条图文消息,共有1361人点击3586次。879人点击微信公众号菜单1001次,人均点击次数为1.14次,点击量较多的子级菜单依次为微信群聊、推拿按摩指导、生活能力测评、行走(站立)训练、语言训练。第三阶段调查结果显示,自愿参与调查的患儿家长共有60名,“经常阅读”和“偶尔阅读”推送消息的家长各占50.00%,53.33%的家长“总是仔细阅读”每条推送消息,95.00%的家长向别的患儿家长推荐过本公众号,83.33%的家长转发过精彩图文消息至自己微信朋友圈。患儿家长自评微信公众号对其帮助程度得分为(7.88±1.59)分,其主要影响因素为患儿疾病分型、患儿性别、患儿Barthel指数得分和患儿家长满意度。结论:脑瘫患儿家长对依托微信公众号进行康复知识学习的需求较高,家长对微信公众号的认可接受度与应用实效较好,并能获得较多的专业指导与情感支持。因此,家庭康复指导微信公众号可作为对脑瘫患儿家长提供支持并促进其对患儿实施有效康复锻炼的便携健康指导工具。
[Abstract]:Objective: to explore the demand characteristics and influencing factors of family rehabilitation WeChat platform for the parents of children with cerebral palsy, so as to provide theoretical basis for the construction of the public number of family rehabilitation WeChat. With the help of WeChat public number, the author provided family rehabilitation guidance for the parents of children, and probed into the application effect of WeChat public number and its influence on parents. Methods: quantitative and qualitative studies were carried out in three stages. In the first stage, the parents of children with cerebral palsy who were interviewed by semi-structured hospitals were investigated qualitatively. On the basis of this, the questionnaire of rehabilitation guidance needs was compiled by the method of expert letter, and 121 parents of children were selected by objective sampling. In the second stage, based on the results of the preliminary needs survey and the rehabilitation guidelines for children with cerebral palsy, relevant books and hospital medical and nursing staff guidelines were used to apply for the WeChat public number and determine the contents of the rehabilitation guidance. With the help of hospital platform WeChat public number promotion, through WeChat group chat with parents to understand its dynamic needs. In the third stage, after three months of operation, a questionnaire was compiled on the basis of literature review and expert inquiry, and a questionnaire was sent to the concerned users with the help of the WeChat public number. The effect of public number use was evaluated by voluntary parents. Results: the results of the first stage study showed that the usage rate of family WeChat in children with cerebral palsy was 95.54, 32.14% of the parents had paid attention to the related rehabilitation WeChat public number, and 94.64% of the parents were willing to pay attention to the family rehabilitation guidance WeChat public number of children. The score of demand for rehabilitation guidance was 31.80 卤7.60 and was influenced by education level. The frequency of reading WeChat public number was 2.57 卤1.60 times per day, and the reading time was mainly before bedtime. Parents' rehabilitation needs are guided by massage, walking (standing), online communication, daily diet and speech training. The current status of the second phase of WeChat public number: 190 parents from 25 provinces around the country have paid attention to the WeChat public number, of which 138 have been used in Jiangxi Province. A total of 28 pictures and text messages were pushed by the public number for 3 months. A total of 1361 people clicked 3586 times. 879 people clicked on the WeChat Public number menu 1001 times, and the per capita number of clicks was 1.14 times. The more numerous sub-menus were WeChat group chat, massage instruction, and so on. Life ability test, walking (standing) training, language training. According to the results of the third phase of the survey, 60 parents volunteered to participate in the survey. "often read" and "occasionally read" push message 50.003% 53.33% of parents "always read carefully" every push message 95. 00% of parents recommended to other parents of their children, 83.33% of parents have forwarded wonderful pictures and texts. To your WeChat circle of friends. The score of public number of self-rated WeChat was 7.88 卤1.59, and the main influencing factors were disease type, sex, Barthel index and parents' satisfaction. Conclusion: the parents of children with cerebral palsy have a higher demand for learning rehabilitation knowledge relying on the WeChat public number, and the parents have a better acceptance and application effect of the public number of WeChat, and can obtain more professional guidance and emotional support. Therefore, the public number of family rehabilitation guidance WeChat can be used as a portable health guidance tool to support the parents of children with cerebral palsy and promote their effective rehabilitation exercise.
【学位授予单位】：南昌大学
【学位级别】：硕士
【学位授予年份】：2017
【分类号】：R473.74

【参考文献】