综合关怀对血友病患者生存状况影响的研究

发布时间：2018-06-07 23:06

本文选题：血友病 + 综合关怀　；参考：《中华护理杂志》2017年09期

【摘要】：目的分析综合关怀干预对我国血友病患者生存状况的影响。方法借鉴世界血友病联盟的血友病管理经验,结合我国国情,对血友病患者实施综合关怀。在综合关怀干预前后(2004年及2016年)两次对北京市常住血友病患者生存状况进行问卷调查,2004年首次调查作为干预前基线数据,将基线数据与截至2016年接受血友病综合关怀2年或以上患者的调查结果进行比较分析。结果干预前调查患者109例,干预后调查患者136例。综合关怀干预中血友病患者开展预防治疗39例(28.7%),家庭治疗70例(51.5%);在治疗及时性上较基线数据显著提高(P0.01),干预后患者年平均每月出血次数得到显著控制(P0.01)。关节功能障碍影响行走显著下降(P0.01)。结论综合关怀干预后,逐步开展血友病的预防治疗和家庭治疗,血友病患者出血控制较好,治疗更及时,患者的行走能力提升。
[Abstract]:Objective to analyze the influence of comprehensive care intervention on the survival status of hemophilia patients in China. Methods based on the experience of hemophilia management in the World hemophilia Union, comprehensive care for hemophilia patients was carried out according to the situation of our country. Before and after the comprehensive care intervention (2004 and 2016), a questionnaire survey was conducted on the survival status of hemophilia patients in Beijing. The first survey in 2004 was used as baseline data before intervention. The baseline data were compared with the results of a survey of patients receiving comprehensive care for hemophilia for 2 years or more up to 2016. Results 109 patients were investigated before intervention and 136 patients were investigated after intervention. In the comprehensive care intervention, 39 patients with hemophilia were treated with prophylaxis, and 70 patients with family treatment were treated with 51.5. The treatment timeliness was significantly higher than that of baseline data, and the average monthly bleeding times of the patients were significantly controlled after intervention. The joint dysfunction had a significant decrease in walking (P 0.01). Conclusion after comprehensive care intervention, hemophilia prevention treatment and family treatment are carried out step by step. Hemophilia patients have better bleeding control, more timely treatment, and better walking ability.
【作者单位】：中国医学科学院北京协和医院血液内科;中国医学科学院北京协和医院护理部;中国医学科学院北京协和医院儿科;
【基金】：北京协和医院杰出青年基金项目(JQ201502)
【分类号】：R473.5

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