学龄期脑性瘫痪儿童康复、教育、辅具情况随访

发布时间：2018-12-10 23:37

【摘要】：目的对脑瘫患儿进行康复、教育及辅助器具相关情况的随访。方法对2012年至2015年本中心完成随访的80名脑瘫患儿家长进行电话随访并填写调查表。结果 69名(85.25%)继续接受康复,11名(13.75%)停止康复训练。45名(56.25%)在普通小学接受教育,15名(18.75%)在特殊小学接受教育,4名(5.00%)在养护机构,16名(20.00%)在家。患儿现阶段的困难和需求主要有继续康复、接受学校教育、希望报销多个机构康复费用等。61名(76.25%)申请过辅具,19名(23.75%)没有申请过。辅具申请过程的反馈依次是:申请过程顺利;申请过,但因种种原因没得到;申请到的辅具不合适/不好用等。59名儿童(73.75%)目前需要辅助器具,21名儿童(26.25%)不需要。当问及"目前需要的辅助器具种类"时,19人次(约20%)的回答是不了解辅具类型或不知道需要什么辅具。结论为学龄期患儿提供有质有量的康复服务和教育服务仍是相关部门需要努力的工作;极需要对残疾患儿及家长普及辅助器具相关知识及肢体残障者辅助器具的临床应用知识等,辅助器具供给单位也需要与残疾患儿及家长就辅助器具进行更多沟通,以减少资源浪费,增加资源合理利用,为残疾患儿提供更多福利。
[Abstract]:Objective to follow up the recovery, education and assistive devices in children with cerebral palsy. Methods 80 parents of children with cerebral palsy who were followed up from 2012 to 2015 were followed up by telephone and completed questionnaire. Results 69 (85.25%) of them continued to receive rehabilitation, 11 (13.75%) stopped their rehabilitation training, 45 (56.25%) received education in general primary schools, and 15 (18.75%) received education in special primary schools. Four (5.00%) were in care and 16 (20.00%) were at home. At the present stage, the main difficulties and needs of the children are continuing rehabilitation, receiving school education, hoping to reimburse the rehabilitation expenses of many institutions, etc. 61 (76.25%) have applied for accessories, 19 (23.75%) have not applied. The feedback of the accessory application process is as follows: the application process is smooth, the application has been applied, but for various reasons, the application process has not been obtained; 59 children (73.75%) currently need assistive devices and 21 children (26.25%) do not. When asked about "types of assistive devices currently needed", 19 people (about 20%) answered that they did not know the type of accessories or what they needed. Conclusion it is necessary for relevant departments to provide quality and quantity rehabilitation and education services for school-age children. There is a great need to popularize the knowledge of assistive devices and clinical applications of assistive devices for children and parents with disabilities, and so on. The supply units of assistive devices also need to communicate more with children and parents with disabilities on assistive devices. In order to reduce the waste of resources, increase the rational use of resources to provide more welfare for children with disabilities.
【作者单位】：北京市残疾人康复服务指导中心;香港浸会大学;
【分类号】：R742.3

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