克罗恩病患者自我鼻饲体验的质性研究

发布时间：2018-01-06 11:21

本文关键词：克罗恩病患者自我鼻饲体验的质性研究　出处：《浙江中医药大学》2017年硕士论文　论文类型：学位论文

【摘要】：目的本研究旨在了解克罗恩病患者自我鼻饲的出发点、鼻饲期间遇到的问题和解决措施,以及自我鼻饲对其生活和工作各方面产生的影响,通过探讨克罗恩病患者自我鼻饲体验,增进医务人员及社会大众对该群体的认识,为其临床干预和社会支持提供依据。方法采用诠释性现象学研究方法,通过目的抽样,选取来自杭州市多家综合医院的门诊及病房就诊的克罗恩病自我鼻饲患者为研究对象,进行个人深度访谈。资料分析主要按照Benner分析法进行,直至主题饱和,再无新主题产生为止。结果共访谈11名克罗恩病患者,访谈资料经分析形成四个主题八个亚主题:1排斥鼻饲:恐惧插管、存在顾虑;2接受鼻饲现实:身体最重要、力量的支撑;3鼻饲是把双刃剑:鼻饲的困扰、鼻饲的疗效;4鼻饲如家常便饭:对插管习以为常、鼻饲成为生活的一部分。结论本研究获得了关于克罗恩病患者自我鼻饲体验的理解。克罗恩病患者在自我鼻饲期间面临诸多心理考验,且增添了躯体不适、饮食和形象异常以及生活不便的困扰,对此,患者能够自我调整或予以克服,最终适应鼻饲。但并非每位患者都能达到这种适应状态,医务人员应调动医护患及社会大众等各方面力量,帮助患者尽快适应"新生活""。
[Abstract]:Objective to investigate the starting point of self-feeding of Crohn's disease patients, the problems encountered during nasal feeding and their solutions, and the influence of self-feeding on their life and work. By exploring the experience of self-feeding in patients with Crohn's disease and enhancing the understanding of this group among the medical staff and the general public, we can provide the basis for its clinical intervention and social support. Methods the hermeneutic phenomenological research method was adopted. Objective to select self-feeding patients of Crohn's disease from outpatients and wards of many general hospitals in Hangzhou. Conducted personal in-depth interviews. Data analysis was mainly conducted according to the Benner analysis until the theme saturated no new topics. Results A total of 11 patients with Crohn's disease were interviewed. The interview data were analyzed into four themes, eight sub-themes: 1 rejection of nasal feeding: fear intubation, concern; (2) accept the reality of nasal feeding: the body is the most important, the support of strength; (3) nasal feeding is a double-edged sword: the puzzlement of nasal feeding and the curative effect of nasal feeding; 4 nasal feeding as usual: intubation is used to take for granted. Conclusion this study has gained an understanding of the experience of self-feeding in patients with Crohn's disease. Patients with Crohn's disease face many psychological tests during self-feeding and increase physical discomfort. Abnormal diet and image, as well as the inconvenience of life, patients can self-adjust or overcome, and finally adapt to nasal feeding, but not every patient can achieve this state of adaptation. Medical personnel should mobilize medical care and patients and the public to help patients adapt to the new life as soon as possible.
【学位授予单位】：浙江中医药大学
【学位级别】：硕士
【学位授予年份】：2017
【分类号】：R473.5

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