中文版北极星移动评价量表在Duchenne型肌营养不良症患儿的信度和效度研究

发布时间：2018-03-28 00:31

本文选题：Duchenne型肌营养不良症　切入点：活动　出处：《中国循证儿科杂志》2017年04期

【摘要】：目的确定中文版北极星移动评价量表(NSAA)应用在Duchenne型肌营养不良症(DMD)患儿的信度和效度。方法纳入对象为2014年1月至2016年1月在复旦大学附属儿科医院康复科接受功能评估的DMD患儿,均经基因检测或肌肉活检明确诊断,能独立行走≥10 m,无严重认知障碍。2名物理治疗师同时对DMD患儿进行测试,检验不同测试者间的信度;同一评价者在第1次评价后3~7 d进行第2次评价,检测重测信度;采用《国际功能、残疾和健康分类》儿童和青少年版(ICF-CY)的类目编码与NSAA的项目概念进行关联,确定NSAA的内容效度;通过分析NSAA的分值与6 min步行距离的相关性进行关联效度分析。结果 2个治疗师对20名DMD男孩的不同测试结果间的信度分析显示,NSAA原始分和线性分信度ICC分别为0.96和0.97;1名治疗师前后3~7 d重测16名DMD男孩,NSAA的原始分和线性分具有很好的重测信度(ICC=0.96);NSAA17个项目共与8个ICF-CY编码发生了20次关联,8个编码都属于d4(移动)下属,表明NSAA的评价内容主要聚焦于DMD患儿活动能力中的移动能力;143例DMD男孩的NSAA原始分和线性分与6min步行距离具有中等程度的相关性(r分别为0.40和0.38)。结论中文版NSAA量表无论是原始分还是线性分都具有良好的心理测量学特性,结合其他的评价指标,NSAA可以有效地评价中国DMD男孩的活动能力。
[Abstract]:Objective to determine the reliability and validity of the Chinese version of Polaris moving Evaluation scale (NAA) in children with Duchenne muscular dystrophy. Methods from January 2014 to January 2016, the subjects were enrolled in the Department of Rehabilitation, Department of Pediatrics, affiliated to Fudan University. Functional evaluation of DMD children, All of them were diagnosed by gene test or muscle biopsy. They were able to walk independently more than 10 m. There were no severe cognitive impairment. 2 children with DMD were tested by physiotherapists at the same time to test the reliability of different test subjects. The same evaluator conducted the second evaluation 3 days after the first evaluation to test the test-retest reliability; the ICF-CY-category code was used to correlate the ICF-CYC with the NSAA project concept. To determine the content validity of NSAA; By analyzing the correlation between the score of NSAA and the walking distance of 6 min, the correlation validity analysis was carried out. Results the reliability analysis among the different test results of 20 DMD boys by two therapists showed that the original score and linear score ICC of NSAA were respectively. The original and linear scores of 16 DMD boys were retest 3 days before and after 0. 96 and 0. 97. The 17 items of NSAA had good retest reliability and 20 correlations with 8 ICF-CY codes, 8 of which belonged to d4 (mobile). The results showed that the evaluation of NSAA was mainly focused on the mobility of children with DMD. The NSAA original score and linear score of 143 DMD boys had a moderate correlation with the walking distance of 6min, and the r was 0.40 and 0.38, respectively. Conclusion the NSAA quantity in Chinese version is 0.40 and 0.38, respectively. The table has good psychometric characteristics, whether it is original score or linear score. Combined with other evaluation indicators, NSAA can effectively evaluate the activity ability of Chinese DMD boys.
【作者单位】：复旦大学附属儿科医院康复中心;复旦大学附属儿科医院神经科;
【分类号】：R746.2

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