白血病患儿社会支持网络建构的个案管理模式研究

发布时间：2018-05-22 08:39

本文选题：白血病患儿 + 社会支持网络　；参考：《山西医科大学》2017年硕士论文

【摘要】：我国白血病的发病率为十万分之四万人,每年新增白血病患者达4万余人,其中,新增儿童白血病患者占二分之一。针对儿童白血病群体的研究中,医学等其它领域对患儿及其照顾者的研究较多,社会工作介入的研究较少,专门针对白血病患儿支持网络的个案管理方法介入研究则鲜有文献报道。本研究在山西某医院选取了50名白血病患儿为研究对象,通过问卷调查方式分别从情绪、认知、生活秩序、资源四方面对其进行了现状分析。发现因疾病让大多数患儿的人际交往、性格、脾气、情绪状态、就学,患者的家庭氛围、家庭成员的情绪状态都产生了较大影响,而对白血病知识的了解成为多数患者照顾者的主要诉求之一,绝大多数患者获得的主要支持和照顾均来自家庭成员,其它方面支持较少,经济方面受到非常严重的影响。在此基础上,本研究以其中一名白血病患儿为例,探讨了通过个案管理模式建构社会支持网络的方式来帮助其解决情绪、认知、生活秩序、资源几方面困境,发现从个人网络(家庭成员的支持、亲戚朋友的支持和帮助)、志愿连接(志愿者的教育支持和娱乐陪伴支持)、相互援助网络(病友间的知识性支持)、社会授权网络(村委会、所在医院的医护人员、爱心基金的救助、公益平台的支持等)四个方面策略能够协助白血病患者有效构建起社会支持网络,而该支持网络的建构和完善能够提高白血病患儿及其照顾者应对问题的能力,积极面对因重大疾病带来的情绪、认知、生活秩序和资源等困境,缓解因突发事件带来的压力感。最后,本研究分别从四个网络提出了家庭支持、亲戚朋友支持、志愿者教育、团队建立、资源利用、环境建设等对策与建议。
[Abstract]:The incidence of leukemia in China is 40000/100000, and the number of new leukemia patients is more than 40, 000 every year, of which 1/2 are new in children. In the study of childhood leukemia population, there are more researches on children and their caregivers in medicine and other fields, but less research on social work intervention. There are few reports on the intervention of case management methods for leukemia support network. In this study, 50 children with leukemia were selected from a hospital in Shanxi Province, and their current situation was analyzed from four aspects: emotion, cognition, order of life and resources. It was found that the interpersonal communication, personality, temper, emotional state, school attendance, the family atmosphere of the patients and the emotional state of the family members of most of the children were greatly affected by the disease. The understanding of leukemia knowledge has become one of the main demands of most patients' caregivers. The majority of patients are mainly supported and cared for by family members, while others are less supported, and the economic impact is very serious. On this basis, this study takes one of the children with leukemia as an example to explore the way of constructing social support network through case management model to help them solve the plight of emotion, cognition, order of life and resources. Found from personal networks (support from family members, support and assistance from relatives and friends), voluntary connections (educational support and recreational support for volunteers), mutual assistance networks (knowledge support among patients, social empowerment networks (village committees), Medical staff in the hospital, aid from the charity fund, support from the public welfare platform, etc.) four strategies can help patients with leukemia effectively build up a social support network. The construction and improvement of the support network can improve the ability of children with leukemia and their caregivers to cope with the problems, actively face the difficulties caused by major diseases, such as emotion, cognition, order of life and resources, and relieve the pressure caused by emergencies. Finally, this study put forward the countermeasures and suggestions from four networks, such as family support, relatives and friends support, volunteer education, team building, resource utilization, environmental construction and so on.
【学位授予单位】：山西医科大学
【学位级别】：硕士
【学位授予年份】：2017
【分类号】：C916;R733.7

【参考文献】