儿童先天性心脏病登记现状及对策

发布时间：2019-07-11 20:27

【摘要】：先天性心脏病是严重危害我国儿童身心健康的公共卫生问题之一,建立完善的随访、追踪和疾病登记管理系统显得尤为重要。然而,目前我国尚无此类疾病登记系统。文章通过对国内儿童专病登记的现状进行分析,从登记管理体系、信息共享机制和协调管理机制宏观层面存在的问题进行剖析,指出目前儿童专病登记中登记时效性、内容、人员、质量等方面存在的不足。同时,借鉴国内外经验,提出目前在体制完善、统一规范、信息共享、质量监控和资金支持上的工作重点及未来建立我国儿童先天性心脏病专病登记系统的新思路和新对策。
[Abstract]:Congenital heart disease is one of the public health problems that seriously endanger the physical and mental health of children in our country. It is particularly important to establish a perfect follow-up, tracking and disease registration management system. However, there is no registration system for this kind of disease in our country at present. Based on the analysis of the present situation of the registration of children's special diseases in China, this paper analyzes the problems existing in the macro level of the registration management system, the information sharing mechanism and the coordination management mechanism, and points out the shortcomings of the registration timeliness, content, personnel and quality in the registration of children's special diseases at present. At the same time, drawing lessons from the experience at home and abroad, this paper puts forward the key points of the current work in system perfection, unified standardization, information sharing, quality monitoring and financial support, as well as the new ideas and countermeasures for the establishment of a special disease registration system for children with congenital heart disease in China in the future.
【作者单位】：上海交通大学医学院附属上海儿童医学中心;
【基金】：上海市卫生计生委联合攻关项目“上海市小儿先心病、儿童血液肿瘤登记信息共享平台的建立”(2013ZYJB0013) 上海市公共卫生三年行动计划“儿童重大疾病数据合作应用中心的建立及应用”(GWIV-25)
【分类号】：R725.4

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