济宁地区21-三体综合征患儿致家庭负担情况调查

发布时间：2018-09-04 16:45

【摘要】：目的调查济宁地区21-三体综合征患儿致家庭经济负担及精神负担情况。方法 2013年1—8月对济宁市78例21-三体综合征患儿的170名陪护人(试验组)及同期济宁市年龄与患儿相仿的、近期无任何重大疾病的100例健康儿童的190名陪护人(对照组)进行问卷调查。采用生活满意度评定量表(LSR)及生活满意度指数A(LSIA)评定两组陪护人生活满意度,采用症状自评量表(SCL-90)评定两组家庭负担情况。结果试验组农村地区和城镇地区患儿治疗支出占家庭收入的68.56%、55.91%。试验组陪护人LSR、LSIA评分均低于对照组(P0.05);试验组农村地区陪护人LSIA评分低于城镇地区,差异有统计学意义(P0.05);试验组陪护人SCL-90中躯体化、人际关系、抑郁、焦虑及精神病性5个因子评分均低于对照组,差异均有统计学意义(P0.05);试验组农村地区陪护人SCL-90中仅人际关系因子评分高于城镇地区,差异有统计学意义(P0.05)。结论 21-三体综合征患儿不仅会给家庭带来经济负担,更影响陪护人的生活质量及精神健康状况,应该引起足够的重视。
[Abstract]:Objective to investigate the financial and mental burden of 21-trisomy syndrome children in Jining area. Methods from January to August 2013, 170 companions (trial group) of 78 children with 21-trisomy syndrome in Jining city were enrolled in the study, and the age of the patients in Jining city was similar to that of the children in the same period. A questionnaire survey was conducted among 190 carers (control group) of 100 healthy children without any major diseases recently. Life satisfaction rating scale (LSR) and life satisfaction index (A (LSIA) were used to evaluate the life satisfaction of the chaperones and the symptom checklist (SCL-90) was used to assess the family burden of the two groups. Results in the experimental group, the expenditure on the treatment of children in rural and urban areas accounted for 68.56% of the family income. The LSR,LSIA score in the trial group was lower than that in the control group (P0.05); the LSIA score in the rural area of the trial group was lower than that in the urban area (P0.05), the difference was statistically significant (P0.05); the somatization, interpersonal relationship and depression in the SCL-90 of the chaperone in the trial group were significantly lower than those in the urban area (P0.05). Anxiety and psychosis scores of 5 factors were lower than that of the control group, the difference was statistically significant (P0.05); in the experimental group, only the interpersonal relationship factor score of chaperones in rural areas was higher than that in urban areas, the difference was statistically significant (P0.05). Conclusion Children with 21-trisomy syndrome not only bring economic burden to their families, but also affect their quality of life and mental health, which should be paid more attention to.
【作者单位】：济宁医学院;山东省"十二五"高等学校人文与社会科学研究基地——行为与健康研究基地;
【基金】：山东省2011年医药卫生科技发展计划项目(2011QW005) 山东省2012年科技发展计划(政策引导类)医药卫生项目(2012YD18047) 山东省2013年医药卫生科技发展计划项目(2013WS0331)
【分类号】：R714.5

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