115例唇腭裂患者的父母生活质量调查研究

发布时间：2018-04-28 23:30

本文选题：唇腭裂 + 年龄　；参考：《华西口腔医学杂志》2015年02期

【摘要】：目的了解唇腭裂患者的父母生活质量状况,探讨其影响因素,为改善唇腭裂患者父母的生活质量、促进唇腭裂患者健康成长提供理论依据。方法选取115名唇腭裂患者的父母为试验组,另选198名成人(孩子健康且年龄段与试验组相仿)作为对照组。试验组按照唇腭裂类型分为3个亚组:单纯性唇裂伴或不伴牙槽突裂组(CL)、单纯性腭裂组(CP)、唇腭裂组(CLP),试验组和对照组均按照患者年龄分为4个亚组:0~1岁、1~3岁、3~6岁、6岁;按照学历分为初中及以下学历、高中及中专学历、大专及以上学历。采用生活质量综合评定(GQOLI-74)量表对试验组和对照组进行测评。使用SPSS 16.0软件进行数据分析。结果 1)试验组与对照组总体及各年龄段的各项得分均无统计学差异。2)不同唇腭裂类型患者的父母GQOLI-74量表各项得分均无统计学差异(P0.05)。3)3~6岁患者的父母在生活质量总分、心理功能维度及社会功能维度得分上低于6岁患者的父母(P0.05),0~1岁、1~3岁患者的父母在社会功能维度得分上低于6岁患者的父母(P0.05)。4)大专及以上学历父母的社会功能及物质生活维度得分高于初中及以下学历父母(P0.05);高中及中专学历父母的社会功能维度得分高于初中及以下学历患者的父母(P0.05)。结论唇腭裂患者父母的生活质量与正常儿童父母无明显差异;低年龄段唇腭裂患者的父母及低学历父母的生活质量需要得到更多的帮助和支持。
[Abstract]:Objective to investigate the quality of life of parents of cleft lip and palate patients, and to explore the influencing factors, so as to provide a theoretical basis for improving the quality of life of parents of patients with cleft lip and palate and promoting the healthy growth of patients with cleft lip and palate. Methods 115 parents of cleft lip and palate were selected as experimental group and 198 adults as control group. The experimental group was divided into three subgroups according to the type of cleft lip and palate: simple cleft lip with or without alveolar cleft, simple cleft palate with CPP and cleft lip and palate with CLP. The test group and control group were divided into 4 subgroups according to the age of the patients. It can be divided into junior middle school and below, high school and technical secondary school, junior college and above. The quality of life (QOL) scale GQOLI-74 was used to evaluate the test group and control group. SPSS 16.0 software is used for data analysis. Results 1) there was no significant difference in the scores of the total and age groups between the test group and the control group. 2) there was no significant difference in the scores of the parents' GQOLI-74 scale between the patients with different cleft lip and palate type. There was no significant difference in the scores of the parents of the patients aged 6 years old (P0.05) and the total score of the parents' quality of life (QOL). The scores of psychological and social function dimensions are lower than those of parents of patients aged 6 years old and those of patients aged 1 year old or 3 years old. The scores of social function dimensions of parents of patients aged 1 year old and 3 years old are lower than those of parents of patients aged 6 years old.) the social function of parents with college degree or above is lower than that of parents with college degree or above. The score of quality of life was higher than that of parents with junior high school education or below, and the score of social function of parents with high school and technical secondary school education was higher than that of parents with junior high school degree or below. Conclusion there is no significant difference in the quality of life between parents of cleft lip and palate and that of normal children, and the quality of life of parents of patients with cleft lip and palate at low age and parents with low education need more help and support.
【作者单位】：口腔疾病研究国家重点实验室华西口腔医院(四川大学);口腔疾病研究国家重点实验室华西口腔医院(四川大学)唇腭裂外科;
【基金】：卫生部口腔颌面外科国家临床重点建设专科基金资助项目(2011)
【分类号】：R782.2

【参考文献】