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女性改良自我形象评分与粪失禁生活质量问卷中文版本研制与中国人群验证

发布时间:2018-09-13 21:31
【摘要】:背景 盆底功能障碍性疾病(PFD)是一组以尿失禁(UI)、粪失禁(FI)和盆腔脏器脱垂(POP)为主的功能障碍性疾病,临床上,PFD常合并发生。PFD虽然很少引起严重的合并症和死亡率,却可以显著影响患者的生活质量。在PFD的评估中,患者症状的缓解和生活质量的改善,己经与解剖结构的恢复被提到了同等高度。而以患者为客观主体的调查问卷,则是评价患者的生活质量最有效的手段。目前国际上应用于PFD的问卷主要为英文问卷,非英语国家的问卷经翻译后需要经过心理测量学验证后方可使用。我院妇产科已完成对完成对盆腔器官脱垂与尿失禁性功能问卷简版(Prolapse and Incontinence Sexual Function Questionnaire Short Form, PISQ-12)、盆底功能影响问卷简版(Pelvic Floor Impact Questionnaire short form, PFIQ-7)及尿失禁影响问卷简版(Incontinence Impact Questionnaires short form, IIQ-7)的译制和验证。但关于粪失禁生活质量的问卷,我国目前仍是空白,是亟待解决的重要问题。 MRKH综合征(Mayer-Rokitansky-Kiister-Hauser Syndrome,MRKH)是女性生殖道畸形的一种,表现为先天性无子宫无阴道。研究显示,MRKH患者容易出现心理问题,如对自尊心及自我形象的否定等。国外许多研究均推荐MRKH患者进行心理辅导,然而目前国内这方面的研究还是空白。通过患者对自我形象的评价,可以了解患者的心理状态。改良自我形象评价量表(Modified Body Image Scale,MBIS)是目前国际上在自我形象评价方面应用最广泛的量表,主要应用于肿瘤患者的自我形象评价,在盆腔脏器脱垂患者中也有应用。为此,我们希望通过MBIS在MRKH患者中的应用,了解患者的心理状态,指导我们的临床工作。 目的 1.引进简体中文版的改良自我形象评价量表(MBIS),对其进行中国人群信度和效度的验证,推进其在临床中的应用。 2.引进简体中文版的粪失禁生活质量评分(FIQL),对其进行中国人群信度和效度的验证,推进其在临床中的应用。 方法 1.以"WHO-QOL跨文化生活质量研究问卷翻译法”为标准研制中文版本的改良自我形象评价量表(MBIS),按照心理测量学原则对研制的简体中文版问卷进行中国人群的信度和效度检验。 2.以‘'WHO-QOL跨文化生活质量研究问卷翻译法”为标准研制中文版本的粪失禁生活质量评分(FIQL),按照心理测量学原则对研制的简体中文版问卷进行中国人群的信度和效度检验。 结果 1.50位MRKH患者完成了简体中文版MBIS和SF-12问卷。研究结果显示问卷具有较高的内部一致性及较高的重测信度(Cronbach's alpha系数为0.741,各题目前后两次测量之间ICC值为0.472-0.815)。因子分析结果显示简体中文版MBIS有1个公因子,与原量表相符。用MBIS与SF-12做效标效度分析,结果提MBIS与SF-12得分正相关,P0.01. 2.52位粪失禁患者完成了简体中文版FIQL、SF-12及克利夫兰诊所大便失禁评分。研究结果提示问卷具有较高的内部一致性及较高的重测信度(Cronbach's alpha系数为0.949,各题目前后两次测量之间ICC值为0.437-0.866)。因子分析结果显示4个公共因子可以反映原变量的大部分信息,与原量表符合。FIQL与SF-12得分正相关,与克利夫兰诊所大便失禁评分负相关,且P值均小于0.01. 总体来说,简体中文版MBIS及FIQL在中国人群中具有较高的信度和效度,适合在中国大陆临床和研究使用。
[Abstract]:background
Pelvic floor dysfunction (PFD) is a group of functional disorders characterized by urinary incontinence (UI), fecal incontinence (FI) and pelvic organ prolapse (POP). PFD often occurs in combination with other disorders. Although it rarely causes serious complications and mortality, PFD can significantly affect the quality of life of patients. In the evaluation of PFD, the remission of symptoms and the quality of life of patients are significant. The improvement of quality of life has been raised to the same height as the restoration of anatomical structure. The questionnaire with patients as the objective subject is the most effective means to evaluate the quality of life of patients. We have completed the Prolapse and Incontinence Sexual Function Questionnaire Short Form (PISQ-12), Pelvic Floor Impact Questionnaire Short Form (PFIQ-7) and Incontinence Impact Questionnaire Short Form (Incontinence Questionnaire-7). Translation and verification of inence Impact Questionnaires short form, IIQ-7. However, the questionnaire on the quality of life in fecal incontinence is still blank in China, and it is an important problem to be solved urgently.
MRKH syndrome (Mayer-Rokitansky-Kiister-Hauser Syndrome, MRKH) is a kind of female genital tract deformity, manifested as congenital absence of uterus and vagina. Research shows that patients with MRKH are prone to psychological problems, such as negative self-esteem and self-image. Many foreign studies have recommended psychological counseling for patients with MRKH, but at present this is the case in China. Modified Body Image Scale (MBIS) is the most widely used self-image assessment scale in the world, mainly used in self-image assessment of cancer patients, pelvic organ detachment. Therefore, we hope that through the application of MBIS in patients with MRKH, we can understand the psychological status of patients and guide our clinical work.
objective
1. Introduce the simplified Chinese version of the Improved Self-Image Assessment Scale (MBIS) to verify its reliability and validity in Chinese population and promote its clinical application.
2. The simplified Chinese version of the fecal incontinence quality of life score (FIQL) was introduced to verify the reliability and validity of the Chinese population and promote its clinical application.
Method
1. A Chinese version of the improved self-image assessment scale (MBIS) was developed based on the translation method of the WHO-QOL cross-cultural quality of life questionnaire. The reliability and validity of the simplified Chinese version of the questionnaire were tested according to psychometric principles.
2. The Chinese version of the fecal incontinence quality of life scale (FIQL) was developed based on the translation method of the `WHO-QOL cross-cultural quality of life questionnaire'. The reliability and validity of the simplified Chinese version of the questionnaire were tested according to psychometric principles.
Result
1.50 MRKH patients completed the simplified Chinese version of the MBIS and SF-12 questionnaire. The results showed that the questionnaire had high internal consistency and high retest reliability (Cronbach's alpha coefficient was 0.741, ICC value between the two measurements before and after each topic was 0.472-0.815). MBIS and SF-12 were used to do the criterion validity analysis. The results showed that MBIS was positively correlated with SF-12 score, P0.01.
2.52 fecal incontinence patients completed the simplified Chinese version of FIQL, SF-12 and Cleveland Clinic fecal incontinence score. The results showed that the questionnaire had high internal consistency and high retest reliability (Cronbach's alpha coefficient was 0.949, ICC value was 0.437-0.866 between the two measurements before and after each question). Factor analysis showed that there were four common causes. FIQL was positively correlated with SF-12 score, negatively correlated with Cleveland clinic fecal incontinence score, and P value was less than 0.01.
Overall, the simplified Chinese version of MBIS and FIQL have high reliability and validity in Chinese population, and are suitable for clinical and research use in mainland China.
【学位授予单位】:北京协和医学院
【学位级别】:博士
【学位授予年份】:2014
【分类号】:R711.5

【引证文献】

相关硕士学位论文 前1条

1 陈艳秋;超低位直肠癌ISR术后患者排便功能训练依从性及影响因素的研究[D];吉林大学;2016年



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