自闭症儿童母亲心路历程的叙事研究

发布时间：2018-03-20 00:25

本文选题：自闭症　切入点：母亲　出处：《重庆师范大学》2013年硕士论文　论文类型：学位论文

【摘要】：本研究采用质性研究方法中的叙事研究,探讨自闭症儿童母亲照顾自闭儿的心路历程,当孩子被诊断为自闭症,母亲是如何面对与调适,过程中的感受如何?如何让自己勇敢面对生命中的种种挫折与挑战?同时本研究也试图让研究对象,经由回顾心路历程中,获得自我疗伤,重新肯定自己的生命价值。并通过三位自闭症母亲生命故事之经验分享,让社会大众增加对自闭症及其家庭情况的了解、尊重、关怀和支持；让其他自闭症儿童教养者吸取成功经验,尽量避免走弯路;同时为自闭症教育者在教学与研究中提供参考。研究结果如下：自闭症儿童母亲从发现孩子有异常、确诊、早期干预、上学、青春期、成年、直到孩子的未来,这个纵向的发展过程伴随着母亲心理状态的不断变化,这个过程也是在各种“阻力”和“助力”的不断较量中艰难前进的过程。研究者将此“过程”概括为自闭症儿童母亲的心路历程,具体分为接受期、积极应对期和分享期。每个阶段母亲的内心体验都不相同,基本都经由刚开始的失落、抱怨、绝望,到应对过程中的挫败、怨恨和担心,再到最后内心的平和与释然,也可能伴随积极的内心体验,如欣慰、宽容与感动等。主要的“阻力”主要来自于教养压力、学校与大众的排斥；主要的“助力”为家庭成员特别是丈夫的支持、自闭症家长团体同理心的支持与资源的提供、自闭症母亲坚强乐观的个性特征。研究最后,研究者尝试向自闭症儿童母亲及家人、教育部门及教师、政府政策和未来研究提出相关的建议。期望自闭症儿童母亲的心路历程可以使更多的人了解自闭症、了解自闭症儿童的家庭,早日为自闭症家庭建立一套完整有效的支援系统。
[Abstract]:This study uses the narrative research in qualitative research to explore the heart course of autistic children's mothers caring for autistic children. When the child is diagnosed with autism, how does the mother face and adjust, and how do she feel in the process? How to make yourself brave to face all kinds of setbacks and challenges in life? At the same time, the study also attempted to allow the subjects to gain self-healing, reconfirm their life value, and share the experiences of the three autistic mothers' life stories by looking back on the course of their hearts. Let the society increase the understanding, respect, care and support of autism and their families; let other autistic children to learn from the successful experience, avoid detours, and provide reference for autistic educators in teaching and research. The results are as follows: mothers of autistic children, from finding children with abnormalities, diagnosis, early intervention, school attendance, adolescence, adulthood, to the future of the child, this vertical development process is accompanied by a constant change in the mother's mental state. The process is also a difficult one in the constant struggle of resistance and power. The researchers have summed up this process as the mental process of mothers with autistic children, which is divided into acceptance periods. Positive coping period and sharing period. Each stage of the mother's inner experience is different, basically through the initial loss, complaint, despair, to the frustration in the process of coping, resentment and worry, to the final peace of mind and relief, It may also be accompanied by positive inner experiences, such as gratification, tolerance and emotion. The main "resistance" comes mainly from upbringing pressure, rejection from schools and the general public; the main "help" is the support of family members, especially husbands. The support of autistic parents group and the provision of resources, autistic mothers strong optimistic personality characteristics. At the end of the study, the researchers tried to make recommendations to mothers and families of autistic children, education departments and teachers, government policies and future research. Understand the families of autistic children and establish a complete and effective support system for autistic families as soon as possible.
【学位授予单位】：重庆师范大学
【学位级别】：硕士
【学位授予年份】：2013
【分类号】：G76

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